Precious Memories Facebook Moderator
Mags has had ICP in all four of her pregnancies; her third precious daughter was stillborn. Mags has also gone on to have a successful pregnancy after loss and knows how hard the journey is.
Open Facebook Group Moderator
After experiencing some itching in my second pregnancy I was shocked to discover I had ICP. The next two days were so confusing and frightening because I knew so little about the condition and each doctor I saw seemed to have a different view on my treatment. So I decided to look for some answers online and was lucky enough to find ICP Support. Their help through the last few weeks of my pregnancy was invaluable, and after the safe arrival of my daughter at 36 weeks I was determined to give something back to the organisation that had given me so much. I volunteered as a moderator in the hope that I can provide support to others going through the same thing and raise awareness of the condition.
Open Facebook Group Moderator and Social Media Manager
I was diagnosed with ICP in both my pregnancies, although my bile acid levels were thankfully quite low in my second pregnancy. After my diagnosis first time round I was very anxious about the health of my baby; however, when I found the ICP Support website this explained the condition clearly and simply and helped ease my worries. Having ICP can leave you feeling isolated and anxious, particularly if your health care team know little about the condition. This is what made me decide to volunteer for ICP Support to help other mums access valuable information and a support network.
Open Facebook Group and Private Group Moderator
Yvonne had ICP in both of her pregnancies (in 2009 and 2012). She remembers how frustrating it was trying to get people to understand how the itch felt, and how being able to talk to other sufferers brought a lot of relief. In her day job she is a secondary school maths teacher.
Australia and New Zealand and Precious Memories Facebook Moderator
Rebecca lives in Melbourne Victoria, working part time as a Consumer Engagement Officer at Alzheimer’s Australia Vic. She had ICP with her daughter, who was born safely in 2005, and her son, who was stillborn at 35 weeks in 2009. She went on to have another daughter in 2010 and did not develop ICP during her pregnancy. Rebecca is a moderator on ICP Support’s Australia and New Zealand and Precious Memories groups.
Australia and New Zealand Facebook Manager
In 2006 and pregnant with my first child I started itching. The doctors were at a loss to explain it and with a little self-diagnosis I suggested to them that ICP could be a possible cause. I was subsequently diagnosed and was blessed to deliver a healthy baby girl. I have since had three more children and had ICP in three of my four pregnancies. I started the group (originally as OC Assist) so that I could support women of Australia and NZ in their journey through ICP and to raise awareness so that no other woman feels as alone and uncertain of their pregnancy/condition than I did.
In December 2012 I was diagnosed with ICP at 34 weeks. It was my first pregnancy, and to say I was worried was an understatement. I had never heard of ICP and the hospital seemed to know very little. I went home on the Friday night with so many questions. I came across ICP Support and phoned them. The advice, support and help I received was invaluable, reassuring and so friendly. I was induced at 38 weeks and delivered a healthy baby boy. I would have been lost without the support of the group and their research. Volunteering for the group is a small way of me saying thank you.
Ian has been responsible for the ICP Support website since 2009, taking it through three redesigns. In his day job he is a freelance editor and typesetter.
Open Facebook Group and Private Group Manager and Support and Information Line Befriender
Magdalen has two daughters, one of whom was born prematurely due to ICP. She remembers all too well the unbearable itch and added anxiety of having a pregnancy complication and is here to listen and offer support through the Support and Information Line and online community.
Open Facebook Group and Private Group Moderator
Tracey had two ICP pregnancies in 1996 and 1998. On both times the itching started between 6 and 8 weeks - very early! She was fortunate that her mother read an article about Jenny Chambers during her first pregnancy and was able to enlist her help in diagnosing the condition and seeking the help that she needed. Both daughters were born at 35 weeks and are now healthy teenagers: proof that ICP pregnancies can have positive outcomes.
Facebook Private Group Moderator
Gemma developed ICP very early in pregnancy and suffered from severe itching until she had her baby.
Being told I had a severe liver condition and that my baby was to be delivered at 34 weeks was the first I heard of ICP. It was my first pregnancy and incredibly worrying. I found great support and knowledge through Jenny Chambers and ICP support. The hospital knew very little of the condition and despite reading lots of pregnancy books I had never heard of it! I continued to read about ICP after delivery and during the following months. When I fell pregnant again in 2007 and developed severe ICP, resulting in another early delivery, I found the knowledge I had gained from ICP Support invaluable. I developed ICP again more recently in my third pregnancy and it resulted in a very early delivery. I knew this was my last baby, and since the first I had wanted to give something back to the charity. I’m pleased to be helping raise awareness and supporting fellow itchy mums.
Alice had ICP in two of her three pregnancies. She is a founding trustee of ICP Support but now lives in Sydney, Australia.