‘I am delighted to be a Patron for ICP Support and promote their work. When I was diagnosed with ICP I was confident that the hospital looking after me knew how to look after me and my unborn baby because they conduct research into the condition.
‘But I realise that not all women will receive the same kind of care that I did, because not all hospitals know as much about it as mine does. That’s why I want to help ICP Support raise awareness of ICP and ensure that women have access to the charity’s in-depth knowledge of the condition as well as the great support that they provide.’
‘Pregnancy can be a worrying time even if it runs smoothly, so when I was diagnosed with the condition in my first pregnancy I felt incredibly concerned about the impact on my baby and also overwhelmed by the sudden change in events having had a seemingly ‘perfect’ pregnancy up until that point. My immediate reaction was to research it online, and finding the ICP website was a huge relief – knowing other mums had been or were going through this was such a comfort. The ICP support team are invaluable: they are crusading on behalf of women like me to find out as much as they can about this condition through important research so that diagnosis, care and treatment can be improved in the future. In my second pregnancy I knew my chances of having ICP were very high – knowing that I had the support of this team at that time was worth so much. I look forward to working with ICP Support over the coming years.’
‘ICP is a common liver disease of pregnancy that can have severe consequences in terms of adverse pregnancy outcomes. There is increasing interest in ICP throughout the medical and scientific community. Recent studies have focussed on the underlying causes of the disease in the mother (particularly genetic and hormonal factors) and also on the causes of the complications of stillbirth, preterm labour and features of fetal distress. Researchers are keen to work with patient organisations to take our findings to affected women and babies in the clinic and in the community. I have worked with Jenny Chambers and other members of ICP Support for several years and cannot imagine a more effective and professional group of people to run the charity. I am very pleased to be a Patron and I look forward to working with the charity to help improve management of women with ICP and to understand this important disease.’